Day 3 and 4 kind of run together for me.
First I am thankful for my parents. They help us out in so many more ways than I could begin to list. There's not even a starting or stopping point.
Most recently they stayed over night in SLC with the kids and I for Quinn's appt when Matt couldn't come. They were on their way back from a wedding in LA and stayed there to be with us and help me with the kids.
Which brings me to Shriner's, who I'm also very thankful for!
Quinn had his pediatric neurology appointment last Tuesday afternoon. We drove down on Monday and spent the night. The kids and I went alone and we made really good time and it was fine!
Monday night Quinn did NOT sleep at all. He cried and cried all night long. I thought he was having trouble because we weren't home, but around 5 am he started telling me his ear was hurting. Later, it started oozing blood and yuckies, so I knew he had an ear infection. We spent that morning waiting at a Primary Health to be seen and sure enough, he had ear infections and a ruptured ear drum. Poor guy was just miserable.
Monday before we left I took Paiton to the pediatrician - she had an ear infection and a sinus infection! Yikes, tis the season I guess!
Anyway, Tuesday was Quinn's appointment and the kids were really excited to show Nana and Papa the cool hospital with all the toys, etc. :)
This firetruck was staying at the hotel, needless to say Quinn was very, very happy about it!
In N Out, of course!!
Poor baby, telling me "My ear! Ow! Put a band aid on it!" He kept asking for a band aid to make it better. It BROKE my heart!
He finally slept for about ten minutes on my lap waiting for the doctor. This is SUCH a sad picture to me! :(
The view out the window of Shriners.
So here is my update on Quinn's appointment:
We really didn't learn too much. She took some measurements and noted that Quinn had a huge head, haha. She did some testing on his motor skills, etc. Quinn was obsessing over Fireman Sam while we were there and she noted his obsessing. We talked about his sleep, etc. She said she obviously sees some things with the right side of his body, but she didn't feel comfortable saying it was or was not Cerebral Palsy. She said if it was it was mild and not worth wasting money on an MRI to see if it could determine one way or the other. She did bring up her concern though - that Quinn falls on the Autism Spectrum. I had this concern with him previously before he would talk much. He used to be kind of quiet. He's an excellent talker now, and she was very impressed with his verbal skills. He has full sentences, is able to articulate and tell you what he wants, he tells us he loves us, he missed us, etc. He's affectionate and funny. He makes eye contact and laughs and interacts with kids. Because of all this (which is NOT typical of kids on the spectrum) she said she doesn't feel comfortable diagnosing him at all at this time.
Basically, she got a baseline on Quinn. She took a lot of notes and he will go back in March. She will compare what she has written down to what changes and progress he's made in that time. He will also be seeing a developmental pediatrician as well that time to see what she thinks as far as Quinn being on the Autism spectrum goes. He does have sensory issues and outburts that we experience and deal with regularly, but that's just Quinn to us. We will see what comes of it. For now we are working on our patience with him, and just loving him to pieces. He will continue getting his physical therapy as he is now, and other than that we will just wait until March and watch our little man grow! :) Thanks everyone for your positive thoughts. Obviously this is not what we want to hear, but we know that Quinn is perfect no matter what. He is the most special kid, and the SWEETEST kid I've ever seen. We wouldn't trade him for the world. He makes us all better people. :)
